R E S O U R C E S
This is by no means an exhausted list. We will update and add sections as material become available and vetted as helpful. Please reach out if you have resources to share.
Lymphatic health
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Knowledge is power. Learning how your lymphatic system works or where you system is not working for you will steer how and what you do to promote health in this part of your body. - LINK
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This is an online platform with education, free exercises, community platform, and courses for common swelling pathologies that benefit from self management. -LINK
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Education and community run organization to walk you through diagnosis and care for your body. - LINK
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Knowing all of your options for care and treatment is very important due to the nature of staying ahead of your swelling symptoms. Please bring and use these resources when talking with providers who may be less familiar with lymphatic pathologies. - LINK
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Adding in a few self care tools to help support your lymphatic system during/after cancer treatment is a standard practice. This is especially true if their was lymph node removal as part of your treatment plan. This is an overview of what those tools may look like for you - LINK
The glorious sewer system of your body and the highway that most of your immune system travels by. An under valued system in our body that has so many ramifications to ones health. If you suspect you have some abnormalities in the form of excess fluid retention please educate yourself and your providers. It will pay off to stay ahead of your swelling and prevent progression of symptoms.
Chronic Pain resources
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A wonderful tool to educate yourself on treatment options, self care tools, accessible pain education, and advocacy/support groups. - LINK
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A large document compiled by professionals who research and have clinical expertise helping different pain populations find remission. They have compiled a running document that outlines the different avenues of treatment, medication, procedures, and self care tools one can explore to help one manage their pain presentation - LINK
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diversity in treatment options for pain management is quite limited. You can take part in clinical trials that involve conservative treatment styles to help deepen the clinical research pool on pain management - LINK
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this website can be a bit dense for the average person but a good place to learn more about the current trends and understandings for how the medical community approaches pain management - LINK
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Stuff That Works is a crowd sources online platform that has combined anecdotal (lived experience) of people who live with a chronic condition and the available evidence based treatment options.
I cannot recommend this platform enough as you find the best protocol for your unique health needs. - LINK
Chronic pain is a complex process in your body that can come from many different sources. Our medical community is making strides to educate and provide patient centered care towards pain management, not all clinicians will be educated on pain science or the wide variety of treatment options. Please Send me an email if you need more one-on-one assistance for navigating your specific case. <3
Mental health
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Not responsible for if a person has availability or taking new clients
All providers licensed in the state of Washington
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Follow this link for a visual on the stages of creating a new habit, sustainably in your life. LINK
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The correlation and prevalence having a complex health condition and the effects on ones mental health.
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A UC Berkley program that center accessible guided programing for changing mental patterning to be more positive through short accessible guided mediations - LINK
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Understanding the concept of neuroplasticity will empower one to make the tactical changes in their life and mindset around pain and living well with chronic conditions. Use this as a starting point to understand the important topic for recovery - LINK
Navigating a new diagnosis, seeking a diagnosis, or adjusting your life to a new chronic condition is extremely challenging. Getting professional mental health can assist in understanding of symptoms, has a strong potential to lower pain signals, and allow you process these events while developing strong and effective coping skills moving forward.
Financial Assistance
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Search engine for commonly used pharmaceuticals and generic to brand named. - LINK
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all hospitals have programs to support and waive medical bills based on income level. This legal company can represent your claim. - LINK
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Knowing your legal rights is very important. Every person is entitled to emergency care regardless of insurance coverage. - to learn more
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We have a broken healthcare and private insurance system in the US. Navigating social security benefits, private insurance, and who pays for what is unfortunetly very complicated and unclear. This organization and article specifically sheds some light on how to best negotiate who covers what…
The financial burden of seeking care for chronic conditions are a stress for many people. Be reminded there are resources of support in our non equitable healthcare system that you can access.
Community
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A multi level pediatric support group for children and their families. They have virtual gatherings, summer camps, workshops, and retreats - LINK
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support groups for specific demographics living with chronic illnesses along with support groups for loved ones, parents, and caregivers who support people who live with chronic conditions.
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crowd sources platform around the most successful management tools for the wide variety of chronic conditions.
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This service is shaped around empowering the patient when working on chronic condition diagnosis and managing medical gaslighting. - LINK
A lot of people feel alone in their experience of their unique chronic condition and/or pain. Being able to find community is so important to longevity and acceptance of your health. Also an important place to find tips and tricks for better daily care.
Embodiment focused: Self care guides
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Claira has created free youtube yoga classes that center finding movement, strength, and mindfulness while managing the complexity of persistent pain. - LINK
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Weekly virtual classes ($10) lead by a person who identifies as being chronically ill and is a physiotherapist/pilates instructor. - LINK
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financially accessible virtual chair yoga program that combines stability and mobility work. Yoga truly is for every body and accessibility level. This is a great gateway into finding the joy of moving at any age or mobility level -LINK
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I cannot stop recommending this app for people wanting to work on their sleep hygiene. A plethra of guided meditations to help ease you into sleep - LINK
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A library of functional classes that center queer, fat, and global majority bodies. With guided instructions that center making the right choice for your body. Great selection for a person who does not have a consistent asana yoga practice - LINK
Finding the right tools and practices that are functional for people navigating the complexity of their health can be tricky. The average yoga class, gym work out, or breath work session can cause symptom flares. This is a beginning list of programs that center and empower the disabled experience and a place to find joy with movement and activity :)